Triptorelin messed me up. Help Needed

[flasspass123]

Sounds almost exactly the same as when I had long covid. It could be a coincidence that it kicked in after a med. ME/CFS and LC have a lot of overlap of symptoms. I had mast cell activation, dysautonomia, gastroparesis and a raft of other symptoms. Intolerance to heat, cold and any form exercise. Became allergic to a whole host of things. Palpitations, random racing heart and veins would puff up for no reason.

For the food and other allergies I did H1+H2 antihistamine + ketotifen.

Low dose Naltrexone works for some. Nicotine patches are effective for some people. Maraviroc has the best results.

Took 3 years to recover

Hey man thanks for the response, this could be a possibility. Can you please tell me exactly what you took? H1 + H2 + maraviroc?

 

[Avies48]

Sounds almost exactly the same as when I had long covid. It could be a coincidence that it kicked in after a med. ME/CFS and LC have a lot of overlap of symptoms. I had mast cell activation, dysautonomia, gastroparesis and a raft of other symptoms. Intolerance to heat, cold and any form exercise. Became allergic to a whole host of things. Palpitations, random racing heart and veins would puff up for no reason.

For the food and other allergies I did H1+H2 antihistamine + ketotifen.

Low dose Naltrexone works for some. Nicotine patches are effective for some people. Maraviroc has the best results.

Took 3 years to recover

Wow thats wow…

How did the meds figure into everything? Dosages and time used?

 

[aromatizer]

Hey man thanks for the response, this could be a possibility. Can you please tell me exactly what you took? H1 + H2 + maraviroc?

I experimented over several years and threw everything at it, plus I got covid multiple times. What I can say is the original full FLCCC protocol including 20mg crestor is what started recovery, until I got reinfected. For some unknown reason they took the statin out of the current flccc protocol. It was only when I started on crestor did I start the recovery process. Look up the research papers by Dr Bruce Patterson for the statin+maraviroc protocols. FLCCC worked for alpha strain.

low histamine diet with a H1+H2 antihistamine + 1mg ketotifen for the allergies. You have to experiment with which H1 and H2 work for you. The allergies seem to be driven by mast cell activation (MCAS). the MCAS will keep coming back as long as the trigger is there.

Plavix+apixaban+baby aspirin for micro-clotting. you can replace the apixaban with double dose nattokinase. I found that worked well. Comes from Dr Resia Pretorius protocol. Research papers online. delta strain seemed to respond best to this protocol. Delta gave me severe shortness of breath, none of the lung or blood tests could find a reason. The theory is micro clots clogging capillaries, which puts organs into hypoxic state.

Interestingly there is usually a 3-6 month delay before the symptoms really kick in from infection, making very common for the symptoms not to be linked to covid.

High dose prednisone (50mg) worked to shut down the entire immune response but comes with unfortunate sides. Some people use colchicine.

The small fiber neuropathy (nerve damage in hands and feet) I didn't get much of, you'd have to research that in the long covid forums, but it's quite common.

L-reuteri is supposed to be good for the gut issues. At that time these were the least of my problems.

Covid reactivates dormant viruses, EBV, CMV, lyme etc, again quite common on the forums and have to be treated individually.

Persistent spike protein from the virus or persistent infection seems to be the driver of the cascade. Although persistent viral infection has little actual evidence. Once you clear out the viral debris then recovery can start.

Long covid also could be a result from the vaccine which can cause the same issues.

I can tell you once you start recovering it will take up to a year to heal all the endothelial and nerve damage.

if it is long covid, there are no simple answers or one size fits all solution, basically trying the above and doing research is what I can suggest. Helps to find a doc that doesnt think you're a nutcase when the bloods don't show anything obvious.

 

[slightlyam]

Hey man thanks for the response, this could be a possibility. Can you please tell me exactly what you took? H1 + H2 + maraviroc?

Hey mate, you have MCAS.

All your symptoms are wildly common in MCAS. Dont let anyone fool you into thinking they are psychosomatic (however stress is a mast cell trigger)

Quick knowledge dump:

Avoid stimulants, stress, heat, too much cold. Find your allergic triggers (ie for me any ac, mold, pets hair, pollen triggers mcas) avoid all of them. Avoid food high on histamines.

Quite often there is one main thing that is fucning you up or consistently triggering you (for me was mold in my ac unit plus dogs hair). Cutting exposure to that will help you a LOT.

Your body is constantly inflammed a d activated bc he thinks there is a constant attack to it.

Estrogen -> horrible for mcas. Androgens -> good

Opiods, ket, stimulants of any kind, all bad. Only rec drugs that are neutral or positive are benzos and weed.

Your digestive system probably comes from you trying to eat while hypotensive (endothelial leak from H1 activation and/or vasodilation). Support your blood pressure with ORS (1L of water, half teaspoon of sodium, 3 teaspoons of sugar) though this will be mostly pointless until you dont stop the leak

Investigate for all viruses and infections, especially sibo

Progesterone receptor agonism is good for mcas (tren trest nandrolone)

Choose a mast cell stabilizer: quercetin, tetramethoxyluteolin, Ketotifen (strong but sedating)

H1 blocker, h2 blocker

Serotonin usually good, sometimes ssris are used

Vit C

For now that's all that comes from my head

Personal context:

I had mcas when I was a little kid. Lived in a tropical country. My parents went crazy trying to help me. I was close to death at point

Only really went away when I moved (humidity = bad, mold for us = death)

Came back after a trip to Thailand

Check your triggers, do a diary. I bought an airpurifier, when he claims high allergens in air I immediately get a trigger

Any questions feel free to ask. And relax, mcas nowadays is well studied, you can find a good doctor in your area that knows it

And to the person who suggested him an antipsychotic: you are insanely fucking [...]

 

[slightlyam]

And yo do not underestimate how strong androgens are at stabilising mast cells. Some people get completely cured in cycle