Pete's Log

Bigpete757

New Member
Let me start off by saying this is a very long post. If you don't have the time or are not interested in alot of information, please do not continue reading this thread. My situation is not your average case. I included alot of things in here so anyone reading it or following the thread might be able to help me or recognize things that I am missing.

I will be using this to document my road to recovery. I am confident that I will reach my health goals sometime in the near future and would like your help to achieve them. For the past 11 months, I have taken a very aggressive approach to get healthy again, but I am not there yet. I will try to provide some good background information on everything relating to my health and treatment so you have a general idea of what is going on. I have seen many traditonal doctors locally and at various leading health facilities in my state and they are stumped. I have worked with a few holistic/integrative type doctors and made some progress, but my health still continues to get worse. In regards to doctors and my treatment, I am going to be seeing mostly holistic/functional medicine type doctors, doing research/learning on my own, and asking for help/guidance on various forums to regain my health again.

In addition, my philosophy and take on my whole health situation, is that I refuse to believe that I will not get healthy again. It seems like a lifetime ago, but I was once in a positiion of optimal health and life was almost perfect. With all the advances in modern medicine and good people out there willing to help, I know that will regain my heath.

Background: Around 14-15 started using supplements to build muscle and help with football. I remember taking dhea, tribulus territis, andro, creatinine, protein, etc. Body was in great shape. Around the same time, I also started marijuana/alcohol use. About 18, from drugs and lack of always working out, body and libido took a little hit, but still appeared on the outside to be doing well. Late 18, played college football and blew up too about 250+, which was very high for me. Alot of substance abuse. At 19, I used 1 bottle of the steroid deca along with some dbol. Body was looking good, libido dropped a little. Late 19, started to do alot of cocaine. About 20, started to lose alot of weight and quality of life took a hit. Felt very bad, but couldn't really tell because of so much alcohol and drugs. Still worked out though, throughout this whole time so I never just let myself completely go. 21-22, alot of substance abuse and life just spiraling downhill.

About 23, finally sobered myself up and got my stuff together. Once off the cocaine however, I started to gain some serious weight. Went from about 225 to 300 pounds in less than 2 years. At 24, even though I was gaining alot of weight and health was in bad shape, I was happy that I would be a college graduate. After this, I really started to evaluate my health situation, like wtf is going on. At late 24, went to go see a Doc about the weight gain and possible thryoid issues, and tsh came out a 5.1. So I thought I was on to something. However, I retested a couple months later and it was in range. This had myself and my family stumped so we did not do anything for awhile. And about a year ago. I finally decided I could not take it anymore. The weight gain, lack of libido, constant hunger, no energy, etc. was just something that I just had to address. So I started researching online and came across this forum, among others. I figured that I probably had a low T issue going on, found a local doc, and low and behold, my T is at the level of a 100 year old man. I also found out that I had a very low cholesterol levels.

I tried taking some cream for the T thinking that would solve my problems and life would be good again, however I had a terrible reaction to the T, which was that it made feel like I was going to have a heart attack. Not a little pain here or there, constant pressure and pain in the chest area and shortness of breath, etc. Next step was to go see an endo. He tried shots to see if that would work, but I had the same reaction. However he did find out that I was anemic. I was then referred to a GI and blood doc to look for possible causes of anemia. Had alot of testing and scans to look for things and the GI doc found out the I had an inflamed esphagus and this might be causing the anemia, but he really didn't think so. So at that point, nobody had any solutions for me so I researched why I could have reacted that way to the T. I thought it could possibly be due to thryoid/adrenal problem so I looked for a doctor that might be able to help. Due to my heath continuing to get worse and rush to judgment, I actually flew to see a doctor that I thought had all the answers. After a saliva test said low cortisol, I proceeded with the adrenal medidation cortef. The cortef did raise my T a little, but I felt absolutely awful. Very jittery and nervous and just plain sick.

Then I was asked to increased the dose of cortef I was on and that's when things took a turn for the worst. I started to get intense headaches, which eventually turned into alot of pain in head, neck, and spine, and that eventually turned into the pain in the CNS plus numbness and tingling in the arms. I went off the cortef, but it was too late. The symptoms continued to progress. So I went to various leading institiions such as the Cleveland Clinic and others to make sure that I was not dying or had some terrible disease and so far, things are looking ok in those regards. Thank god.

Up until a few weeks ago, I was still having the CNS symptoms until I noticed something while visiting a family member. I ended up drinking alot of ice water throughout the day and for some reason, it was helping the symptoms I was having. So I decided to keep drinking ice water every day after that and it started to really help. I still felt like crap overall, but at least the pain my CNS and numbness in limbs had became a little more bearable. Then I had a two boils checked out on my lower abdomen that was causing me some problems. Doc did a swab, sent it away and put me on doxycycline in the meantime. I went to Cleveland Clinic for an endoscopy and capsule endoscopy, and on the way home I got the results from the infection which came back as Klebsiella Pneumoniae. So the doc switched me to Keflex and all my CNS symptoms came back again within a day or two.

As you can imagine, I was very disappointed. I tried to switch the antibiotic to Bactrim DS to see if that might help, but the damage was already done. I currently still drink alot of ice water throughout the day, but it no longer helps. And that is where I am at. I am waiting for test results from a spectracell test, Genova stool sample, Genova toxic element hair test, capsule endoscopy test, and testing for a few common viruses.

Relevant Lab tests: I have a very low cholesterol level from my understanding. The total is 99 and the good one is about 20. Triglycerides were mildly elevated 8 months ago, but are now in range. The low cholesterol issue is not genetic and does not make sense for someone who is 6'0, 300 pounds and eats like a horse. And alot of food with cholesterol in it.

Anemia. Virtually all measurement related to red blood cells are low on my CBC. Hemoglobin, mcv, etc. Rdw is always high. Iron levels on TIBC are pretty low. Iron is about 50/60, transferrin is always in range, and the iron saturation is always low at about 17%. I have an elevated reticulocyte count, which means that my red blood cells are getting destroyed to fast. Ferritin is in ok range at a little under a 100. Erythropoetin level is elevated.

Thyroid/Adrenals: Tsh usually over 3, with the lowest being 2.7 All other thyroid levels are in range I believe. Could be on the high end of range or low end. Cortisol used to be around 13, but was at 16/17 last time I checked. Still take a 2.5 mg of cortef every once in a while because I feel shaky if I go too many days/weeks without it.

Testosterone: Around 200. Lowest being 150 and highest about 290.

Vitamins/minerals: Did a genova Nutre-eval test which showed multiple defieiences and problems with detoxification, methylation, etc. Mercury level was high on Genova test, but in normal range on Quest lab test. Waiting for hair toxic element test to come back as well as spectracell test.

Important things to mention: I have a history of infections. I used to get alot ear infections as a kid, lots of antibiotics. Had a pinworm infection when I young as well. Got what I think was a staph infection in jail at 19 years old, thumb ended up swelling up terrible for a long time. A few years later, developed a pilonidal cyst infection that ended up going on for almost a year or two. As I started to gain weight, developed boils in various places on body such as armpit, inner thigh, lower abdomen. Boils on lower abs just abcessed recently and the bacteria found was klebsiella pnuemonia, which from my understanding healthy people are not supposed to get and is a good sign that my immune system is very weak.

Also, I took alot of anti-acid medication when I started to gain weight to try and control heartburn. I took the otc med called zantac in excess for a couple years. Like 15-20 pills a day because I thought it made me feel better than taking a PPI. Still took some PPI's like nexium to if it would help, but made my health worse. I think this really messed the balance in my stomach.

And when I tried to reintroduce the cortef after going off it for the first time, I only went to about 5mg to 7.5mg a day, but my symptoms got much worse. My right eye started twitching a lot, left arm started getting more numb. That is when I reduced the cortef dose to the very bare minimum I would need such as 2.5 mg every week or so.

I also might have an issue with possible elevated levels of mercury. I got a fairly large tattoo when I was about 18 that used a good amount of red ink in it, among other colors. I also have eaten an enormous amount of canned tuna and fish over the years. Partly because it was good for muscle building, etc. Started eating at least a can day when I was about 14 and went off and on for a little while, but it has always been a staple in my diet.

Lastly, I think that my body is very sensitive to things like medication, etc. The way my body reacted to the T cream and shots and the cortef, probably indicates something. Maybe my immune system is very sensitive or some other body system is very sensitive. Not sure what it is, but its important to point out.

My biggest symptoms: The number one issue going on for me is an uncontrollable appetite and constant hunger. I actually feel hungrier right after I eat sometimes. I noticed a few food allergies starting to develop several months ago, so I have cut out various foods, but it still did not make a difference. I have eat every few hours or I almost feel sick and cannot function very well. This has been going for a number of years and slowly gets worse every day. It feels like I am not absorbing any of the food I am eating. I am currently looking for the underlying cause of this issue and will really need your help figuring it out. I am hoping the test results I am waiting on will show something in these regards.

In a sense, I am virtually eating myself to death. I do workout a few times a week and eat healthy food, and this keeps me somewhat in balance, but my health progressively gets worse. I very rarely enjoy eating a meal and it is essentially just a constant hassel to eat all the time. Very mentally draining, especially when your health deteriorates by the day.

The second thing is finding out what is causing the pain in my head, neck, and spine and numbness in the arms. I thought at first it might be MS or something similar, but it is not. I had all the tests. I think it is somehow related to my gastrointestinal system, toxins, poor blood circulation, or vitamin/mineral defieciency. I think the fact that all these symptoms came back after taking one of the worst antibiotics for disrupting your gut flora, Keflex, is a very good sign that the stomach and my CNS symptoms might be connected. And from I read about water, it can dilute toxins in your body, and that is probably why I felt better drinking alot of it.

Next is a frequent urination issue. I have been going to the bathroom almost 20-40 times a day for the last few years. At least 5-10 times at night sometimes. I have however also consumed a good amount of water throughout the day, so endo's ruled d insipudus. The urination all the time is a terrible burden on my life. Can't really ever relax and always looking for a bathroom somewhere you go. And I was checked out by a urologist who did various tests checking for a problem, like restriction or bladder spazm and everything is fine. I think it has do with me probably having low T for so long I am losing sensation or something. I remember reading something I think Dr. Shippen wrote about when he said that alot of testosterone receptors are located in mens genital area and when he has low T, it is very common that he also has frequent urination as well.

Also, weight gain and weight is an issue for me. I am 6'0, 300 pounds and am overweight. It has profound effect on my health. Ever since the CNS symptoms started to happen, I cut out lifting and stuck with running. I could barely run well before this because of so much pain in my ankles, feet, knees, etc. I actually cannot even do sprints any more or jog that well because of plantar fascilitis. I do still push through it though and can barely walk normal for a day or two after working out, just because I have to keep exercising.

Lastly, is my T and energy level. Both are very poor. I am however focused on the other areas of my health first, because I think as I start losing weight, my T will go up and I will have more energy.

What I am suspecting: I think there is some serious issues going on in my gastronintestinal system and or with detoxification of toxins. I have to figure out the underlying cause of why I am so hungry all the time and cannot lose any weight or put on any muscle. I am not sure if it is an issue with my intestines maybe very damaged and they are not absorbing nutrients properly. Could possibly be an enzyme defeiceiny because my bile flow is somehow blocked or bile isn't being utilized properly. Maybe some kind of infection with candida/parasites/bacteria, that is robbing me of all of the imporant vitamins and minerals and signaling to my body to keep eating. Not sure here but this is my #1 focus as of now. I have completed a one stool test so far that showed I could possibly having a problem with candida. I waiting results of another stool this week that will show alot more information.

I am not sure what is going on with detoxification and its pathways, but I think mine could be very messed up right now. From understanding, alot of times people who are struggling with weight gain have alot of fat soluble toxins being stored in their body fat. And the process of the liver being overworked all the time just keeps fueling this process. I am interested in doing some testing to see what is going on here and possibly some trial and error with medications to see if something can work. However, I think the stomach has been addressed first, then come detoxification from what I have read. But in my case, they might be connected, not sure yet.

I have to figure out what is causing my low cholesterol levels. I feel this issue is directly connected to what is causing some of the underlying problems in my case. It could be connected with the bile and liver somehow. Or maybe the indirect result of me not absorbing food properly. I am not sure where it fits in, but know that its important.

I have to figure out what is causing the anemia and issues with RBC's. I also feel that this is connected to some of the underlying problems in my case. What I am having a hard time trying to figure out is why its happening. I am not sure if the iron and RBC's are getting used up from something in my gi tract. Maybe some kind of internal bleeding. Or possibly the levels are low because my body is trying protect itself by hiding the iron from an infection or pathogenic organism. Maybe a toxin like mercury is causing the anemia, but seems unlikely.

In regards to the pain I am experiencing in my head, neck, and spine and the numbness in my arms sometimes, I have at least ruled out a few things. At that is I don't have MS or any other neurological disease, and any other major illness that traditional doctors can find. I am suspecting a possible poor circulation of blood flow because my hands and feet get cold sometimes. And the anemia could be contributing the blood flow issue as well. Or possibly one vitamin/mineral deficiency or multiple ones. Or maybe some kind of toxin, such as toxins from candida/parasite/bacteria, or possibly an environmental or heavy metal like mercury.

Right now I am waiting on a few test results and looking for ways to control my appetite. I looked into possibly juicing fruits and vegetables to help with weight loss and detoxification while I am trying to figure out the underlying causes of my problems, and it seems like a very viable option. I am also looking for doctors that know about some of the issues I am suspecting and will be trying to schedule appointments with them in the near future.

If you can think of anything that might help me in any way or have any questions, please respond to the thread. I will post test results and progress as they develop.

This might sound like alot to try an fix and recover from, but I will do it. I have overcame so many obstacles in my life. This will just end up being one more and it will make me a stronger person in the end. Thank you reading this post.
 
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See a urologist for your urination. Sounds to me like prostatitis.

If your TSH is consistently over 3 wouldn't that warrant some thyroid treatment?

Do your normal/mainstream docs know about your cortef? This is NOT helping your immune system.

What have your doctors ruled out? What are you still suspicious of?

Detoxification is a bunch of bullshit. More on mercury poisoning here:
Mercury poisoning - Wikipedia, the free encyclopedia

Your test levels will probably come up if you lose some weight.

Do you think depression or anxiety have a role in how you are feeling?
 
If you believe mercury may be involved I highly suggest the book from here: "Amalgam Illness:" Diagnosis and Treatment of Mercury Poisoning, Fibromyalgia, Allergies, Chemical Sensitivity and Chronic Fatigue

Additionally, heavy metals typically don't show in the hair unless the exposure is ongoing or very recent.

You urinate frequently...is it frequent or excessive (large volume)? How much urine are you passing in a 24 hour period?

I know about Cutler and even got his advice before on a forum that he runs. I am not sure if the heavy metals are or are not are problem for me just yet. I can tell you that ever since I got my tattoo at 18, I haven't that felt that good. And maybe that combined with all the tuna over the years could have elevated levels of a heavy metal.

I was thinking about a urinary porphyrins tests because I have read they are accurate. Doc wants me to do a dmps challenge to see, but I am waiting to to some more tests first. Whatever the case is, I think I might have to try and fix some gastrointestinal issues first before chelating or detoxing anything.

Urination is frequent, not large volumes. Hard to tell how much urine I am passing, but I go all the time. I do try to keep myself hydrated as well, but it does not make any sense. Have been urinating like this about 4 years. Very mentally draining. Could be from having no T, and something Doctor shippen discussed in the past.
 
Have you had your liver functions checked? I have a friend that has some years of cocaine, crack and alcohol abuse history. it's taken its toll on his liver from what he has told me. He's been clean for a few years now but he doesn't look well. Blotted gut and all. Drugs are incidious.
 
See a urologist for your urination. Sounds to me like prostatitis.

If your TSH is consistently over 3 wouldn't that warrant some thyroid treatment?

Do your normal/mainstream docs know about your cortef? This is NOT helping your immune system.

What have your doctors ruled out? What are you still suspicious of?

Detoxification is a bunch of bullshit. More on mercury poisoning here:
Mercury poisoning - Wikipedia, the free encyclopedia

Your test levels will probably come up if you lose some weight.

Do you think depression or anxiety have a role in how you are feeling?


Saw the urologist about urination. I had two tests run called cystoscopy and urodynamics test that were absolutely horrible. You never experienced anything until someone sticks a tube down your dic. I almost passed out. The results came back fine, no blockages or bladders spazms or anything. Doc wanted me to try to holding my pis in longer if I could, but I am not holding my pis in and feeling uncomfortable for anybody.

I have thought about thyroid treatment and might get on something in the near future. Last time I tried armour and t-3, and could not tell a difference at all. I think I may have a thyroid issue, but that isn't the main problem or underlying cause of why my health is so poor right now in my opinion.

After I told the traditional docs what happened with me being on the cortef, they were all like get off it quickly. And I have been, but still take about a 2.5 every week or so. If I don't, I start to feel very shaky and not good. I seem to be ok at this dose. If I do take say 5 to 7.5 mg or more in a day, my right eye starts twitching and arms get pretty numb.

I had many tests. Almost to the point where I am done going to big hospitals to see if I have some form of major illness. The only test I would maybe consider looking into is blood flow tests to see if I was getting enough blood to my arms and cns. The blood flow thing kind of makes sense in my situation because it is almost similar to when your arm falls asleep. Except it happens when I am just up throughout the day.

They ruled out blood disease, neurological disease, cancer, abnormal deposits or other things that be harmful to your organs, thyroid is good. Basically I was scaned alot with mri's and ct's and ultrasounds and you name it I probably had it done.

What I am suspicious of is a few of the things I mentioned towards the end of my post.

I am not sure if detoxification is a bunch of bs in general or some of it may apply to me and I will need to take it into consideration. I very well might not have mercury poisoning if that is what you are referring to. And I will not even consider chelating unless other things are not working at all. I do believe though my liver definetely could overworked right now and has been for years and this is contributing to my weight gain among other problems. With the amount of food I eat and way I have treated my liver in the past, I am suprised it is working at all.

As far as testing, the only thing I have read about is a caffeine cleareance or something like this. Not sure what else. But I think they fact that my cholesterol is so low means that my liver and detoxification may be involved.

I agree about the test levels coming up with weight loss. I also think that my hormone levels in general will get better once my cholesterol level goes up. Without cholesterol, I cannot produce anything. Figuring out what is causing my cholesterol level to be so low is what I am trying to focus on.

Depression and anxiety are not factor. I try to be the most upbeat person and worry free as I can for someone in my position. I mean to some extent, I have been a little worried about my future lately because of all the cns symptoms I am having. I am only 26 years old and my arms go numb every day, alot of pain in cns, no T, 300 pounds, look terrible, no energy, no job, and just went through about 4 months of testing thinking that the Doc's were going to find some terrible disease. Actualy they have been running major tests since this summer. If you were not a little worried about that, then your the calmest person I know.

But let me emphasize that I was a little worried in past tense. After the docs told me I did not have MS, and a few other things checked out fine, I am a little relieved and now are focusing on trying to get healthier. Hence this thread. Only thing I am a little worried about now trying to put these pieces together. After the T didn't work for me and the adrenal/thyroid medication didn't work, this an area where not too many people know what to do. There are some people such as functional medicine doctors and other integrative doctors that probably would be able to help and that is who I will be working with. The point is that cannot give up or will not give up. I know my situation is a difficult one, but I have learned alot and contine to learn and will not stop until I can regain somewhat of a normal life. As mentioned earlier, with all the good peope out there willing to help and advances in modern medicine, there has got to be some way to improve the quality of my life.

In regards to depression, that has never really affected me even going through all of this. I have been through alot of ups and downs in my life and always bounced back. Just like this, I will get healthy again and it will work out. I am confident it will happen. I have the drive and determination and passion for life most people could only dream of.
 
I know about Cutler and even got his advice before on a forum that he runs. I am not sure if the heavy metals are or are not are problem for me just yet. I can tell you that ever since I got my tattoo at 18, I haven't that felt that good. And maybe that combined with all the tuna over the years could have elevated levels of a heavy metal.

I was thinking about a urinary porphyrins tests because I have read they are accurate. Doc wants me to do a dmps challenge to see, but I am waiting to to some more tests first. Whatever the case is, I think I might have to try and fix some gastrointestinal issues first before chelating or detoxing anything.

Urination is frequent, not large volumes. Hard to tell how much urine I am passing, but I go all the time. I do try to keep myself hydrated as well, but it does not make any sense. Have been urinating like this about 4 years. Very mentally draining. Could be from having no T, and something Doctor shippen discussed in the past.

It would be a very good idea to measure every ounce of fluid you take in during the day and also what you urinate in a day.

High volumes of urine with excessive thirst could indicate deficiencies of something like vasopressin or aldosterone while frequently urinating small amounts may indicate prostate, bladder, etc.

Do you have excessive thirst?
 
It is good to see your doctors getting very deep into this. Very good diagnostic testing going on.
 
See a urologist for your urination. Sounds to me like prostatitis.

If your TSH is consistently over 3 wouldn't that warrant some thyroid treatment?

Do your normal/mainstream docs know about your cortef? This is NOT helping your immune system.

What have your doctors ruled out? What are you still suspicious of?

Detoxification is a bunch of bullshit. More on mercury poisoning here:
Mercury poisoning - Wikipedia, the free encyclopedia

Your test levels will probably come up if you lose some weight.

Do you think depression or anxiety have a role in how you are feeling?

Lets look at this from 2 different prospects

Clincal approach verifired by testing
1. Low testosterone
2. b-12 deficiency
3. heavy metals toxicity
4. Anxiety
5. Depresson
6.. Leptin issues


Potential issues
1. Low thyroid due to secondary adrenal insufficency
2. Low adrenal function
3. Malaabsorption
4. insulin imbalances - prediabetic state
5. methylation issues - mthfrr, methione synthase.
6. Small bacteria overgrowth
7. Neurological issues - OCD, ADDHD
8. low cholesterol levels
9. intestinal permability problems - gap junctions issues in the gut.
10. Allergies
11. state of inflammtion
12. porphia - spelling



Detoxifcation is not a bunch of bull shit because majority of all americans are toxic to some degree.
Look up phase 1 and phase 2 detoxifcations there could be imbalances either or
If you pathways are jammed up then you can not get rid of toxins properly.

I'm willing to give free consulation Also present will be my girlfriend who is a licensced psychologist both here and the UK. She has shed alot of light o hidden issues went undiscovered. She has also published a few books as well

Low RBC and hemoctit with normal ferritin could be
1. Low testosterone
2. Low thyroid
3. Low adrenal out put
4. Iron metabolism problem
5. Mercury toxictiy

I can see where this is going every one is going to be throwing darts on a board and seeing where they land.

Yes pete and who told you about low cholesterol and alter detoxifcation?
Cholesterol is needed for repair and also needed for bile salts, detoxifcation and also GUT and TISSUE REPAIR

If you look at your pattern of thinking it is going in a cyclic motion and going back to everything I suggested a year ago.

Low cholesterol is just genetic to
Again you are drawling strawls

You going on TRT at one time did you in because it redistrubted the mercury deeper into the tissue.

As much as you do not want to admit the problem is not Tattoi problem is your abiitty to unload it.
I have female that had identical testing to you on nutra eval - AFter working with her for 8 weeks shes back to pretty much normal living. The difference it that she did not research anything and put her trust in the person working with her. Constanly researching things will only add to anxiety. People end up making them self even sicker and a dog chasing its tail.
 
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In the past I had posted an extensive thread on Leptin and it's signifignance within the body, too much or too litle can be devastating. Hans may be onto something with the leptin resistance. Hypoleptimea is another story, but more treatable. The pathway of leptin resistance, from what I've researched, is a long hard one to recovery from, including much attention to diet and exercise. This may be peice of your puzzle.
 
In the past I had posted an extensive thread on Leptin and it's signifignance within the body, too much or too litle can be devastating. Hans may be onto something with the leptin resistance. Hypoleptimea is another story, but more treatable. The pathway of leptin resistance, from what I've researched, is a long hard one to recovery from, including much attention to diet and exercise. This may be peice of your puzzle.

Pete due to hippa act please post your leptin results...
This was identified and when researched it was found to be highly assocaited with thyroid imbalances and insulin resistance.
 
Lets look at this from 2 different prospects

The difference it that she did not research anything and put her trust in the person working with her. Constanly researching things will only add to anxiety. People end up making them self even sicker and a dog chasing its tail.

HAN, how the hell can you say this when you have been in the same boat and would still be there if not for your own research?
 
HAN, how the hell can you say this when you have been in the same boat and would still be there if not for your own research?

The thing was I pinpointed the first time, but Dr completely blew it off. After that I was a dog chasing its tail for over 2 years. People with potentially OCD will tend to make them self sicker. Why I tell people find a good practioner you trust and let them do their job. People walk in the door with big chip on their shoulder before I even start. You should see the look on peoples faces when they come in and then when I start talking their expressions compeltely change. Its called being confident in what you know and what direction you have to take. When dealing with multiply dr's one needs to have reports from every one to keep the other in the loop. With out this it makes it literally impossible to correspond and to get any kind of resolution or progress. The people that make progress are the ones that stay the course run protocol then get tested. When one starts Dr hopping it makes it impossible. People come to a Dr protocol is given then they just disappear and wonder why they do not get better. Paitents needs to do their research, but it comes a point to where it becomes obessive and can linger on borderline hypochondriac. The problems have been indentified now the next step is what to do about it. and what sequence. With out healing the gut dealing with mercury is pretty much useless. I have few people that are dealing with these same issues and taking it one layer at time and its taken over a year to start feeling better others get feel better in a fee months. Since my Gf is now involved it has open my mind up to a whole new area that has been completely over looked and ignored.
 
Have you had your liver functions checked? I have a friend that has some years of cocaine, crack and alcohol abuse history. it's taken its toll on his liver from what he has told me. He's been clean for a few years now but he doesn't look well. Blotted gut and all. Drugs are incidious.


Liver functions tests on my CMP always come back normal. I haven't had any further testing, but I am glad you brought it up because it may be a very important to my case. As mentioned earlier I am suprised my liver is even holding up from all the alcohol and substance abuse in the past and now all food I have consumed on daily basis over the past few years. You are right about drugs, they are the devil.
 
It would be a very good idea to measure every ounce of fluid you take in during the day and also what you urinate in a day.

High volumes of urine with excessive thirst could indicate deficiencies of something like vasopressin or aldosterone while frequently urinating small amounts may indicate prostate, bladder, etc.

Do you have excessive thirst?

I do have excessive thirst. I will look into what you mentioned but my bladder and prostate and everything else checked out ok. And I had to go through hell to make sure by doing various urology tests. My aldosterone level was about 10 last time I checked and not sure about vasopressin. Measuring the urine throughout the day sounds like a smart idea.
 
I'm assuming you checked b12 at some point as well?

B-12 serum was about 500 during the summer, but I imagine it has gotten worse since I have developed alot of food allergies and more GI issues. I am getting results from spectracell soon so that should give me a good idea.
 
I do have excessive thirst. I will look into what you mentioned but my bladder and prostate and everything else checked out ok. And I had to go through hell to make sure by doing various urology tests. My aldosterone level was about 10 last time I checked and not sure about vasopressin. Measuring the urine throughout the day sounds like a smart idea.

Low aldosterone will result in salt-wasting which will cause frequent urination, fatigue, thirst, orthostatic and heat intolerance among other things.

The best way to test seems to be to avoid all sodium for 24-48 hours before the test and then test renin/aldosterone. It should be fairly high as the body attempts to reserve whatever sodium it can. The treatment for low aldosterone is typically florinef.

Low vasopressin will result in excessive thirst and frequent urination. Treatment is usually with DDAVP. Testing is usually done with water deprivation under doctor's care.

There can also be HPA dysfunction resulting in an inappropriate thirst mechanism. Essentially, this will cause you to feel thirsty when you aren't. The result will be drinking too much and urinating too much along with loss of valuable electrolytes.

All of these can be related to heavy metals or may occur independently.
 
Lets look at this from 2 different prospects

Clincal approach verifired by testing
1. Low testosterone
2. b-12 deficiency
3. heavy metals toxicity
4. Anxiety
5. Depresson
6.. Leptin issues


Potential issues
1. Low thyroid due to secondary adrenal insufficency
2. Low adrenal function
3. Malaabsorption
4. insulin imbalances - prediabetic state
5. methylation issues - mthfrr, methione synthase.
6. Small bacteria overgrowth
7. Neurological issues - OCD, ADDHD
8. low cholesterol levels
9. intestinal permability problems - gap junctions issues in the gut.
10. Allergies
11. state of inflammtion
12. porphia - spelling



Detoxifcation is not a bunch of bull shit because majority of all americans are toxic to some degree.
Look up phase 1 and phase 2 detoxifcations there could be imbalances either or
If you pathways are jammed up then you can not get rid of toxins properly.

I'm willing to give free consulation Also present will be my girlfriend who is a licensced psychologist both here and the UK. She has shed alot of light o hidden issues went undiscovered. She has also published a few books as well

Low RBC and hemoctit with normal ferritin could be
1. Low testosterone
2. Low thyroid
3. Low adrenal out put
4. Iron metabolism problem
5. Mercury toxictiy

I can see where this is going every one is going to be throwing darts on a board and seeing where they land.

Yes pete and who told you about low cholesterol and alter detoxifcation?
Cholesterol is needed for repair and also needed for bile salts, detoxifcation and also GUT and TISSUE REPAIR

If you look at your pattern of thinking it is going in a cyclic motion and going back to everything I suggested a year ago.

Low cholesterol is just genetic to
Again you are drawling strawls

You going on TRT at one time did you in because it redistrubted the mercury deeper into the tissue.

As much as you do not want to admit the problem is not Tattoi problem is your abiitty to unload it.
I have female that had identical testing to you on nutra eval - AFter working with her for 8 weeks shes back to pretty much normal living. The difference it that she did not research anything and put her trust in the person working with her. Constanly researching things will only add to anxiety. People end up making them self even sicker and a dog chasing its tail.


I am glad you responded. Even though things not have worked out that great in the past, you know alot about my case and are still in position where you could probably help me. Since communication has been a problem before, and you seem to check this forum every day, I will be posting things on this thread related to my health situation from various doctors I am working with and we can go from there. It seems to make the most sense.

I agree about the detoxification and think it could be a big factor in my case. I am just not sure how to address the problem and in what order should I address it. For me, it could be a combination of things going on such as not absorbing my food correctly for whatever reason and then this leads my liver being overloaded with extra toxins that were supposed to be broken down by my stomach already, and some of those end up getting turned into fat soluble toxins where they are stored as body fat, and I end up gaining weight and or can't lose weight, and the process repeats itself every day. Sounds like a possible scenerio but could be a few different scenario's going on instead of this one.

I don't think anybody is going to be throwing darts and seeing where they land about my situation. I created this thread so people could look at my overall situation and maybe offer some advice on things I should look into and or ask questions and or anything they could think of that could possibly help, please post it for god's sake. And also people might learn from this thread now while its happening and in the future. I am willing look into what anyone says to try and help me on this thread, just like I look into what you say. What you say is not always right and lord knows some of us know that to well, it is just a possibilty of what could be going on or a dart so to speak. And I view it the same way as any other post.

You did tell me about cholesterol and how important it is so you were right on target. What we have to try and do is figure out the underlying cause of why its so low. Could it be mercury, possibly. I am not sure though. If I didn't have all the problems with an uncontrollable appetite and weight gain and feeling like I am not absorbing any food, I would certainly suspect mercury at the top of the list. However with the other things I have going on, it makes sense that it somehow could be tied to me not absorbing my food properly and or something going on with my liver via something to do with bile, enzymes, and detoxification.

Yes, some of the things you suggested in the past definitely could be playing an important factor into what is going on now. We just didn't do further testing to actually figure out the underlying causes so I could get healthy again.

Not sure what the low cholesterol is genetic and strawls thing you mentioned was referring to. Are you saying you think my low cholesterol is genetic? I said in my post that the low cholesterol was not genetic in my family.

Its funny that you mention the TRT and it possibly making my mercury situation worse. We never discussed that before, but it was one of the things I came across when looking at mercury and thought it could possibly have affected me. Seems like adding alot of T to someone who has a mercury situation, could be very bad. I sure did have a terrible reaction to the T. But also to the cortef. I think my body could be in some sort of over sensitive mode right now where I am reacting very quickly and negatively to certain forms of medications. I not sure what this indicates. I remember Dr. M mentioning something about how he thought my immune system could be a little over stimulated right now. I think my immune system is currently very weakend right now. Do you know I have to drink cough medicine almost every day just so I am not coughing my head off. And this has been going on for months. And I often feel sick and have been for awhile. Like I have the flu, except it never goes away. And do have a history of alot of infections, etc. I think it is possible that might immune system could be way over stimulated from something going on inside my body and this is actually lowering my overall ability to handle infections and other important things the immune system is suppossed to do.

One thing about the mecury issue is. I am not sure if I should even think about chelating until I address my GI issues first. I read that if your gi tract and detoxification pathways are a little messed up, when you try chelating it will not work properly and you could just end up reabsorbing the mercury. On the other hand, maybe one of the reasons why I am having GI issues and or issues with detoxification could be because of a mecury overload and I will not get better until I start chelating mercury out. Not sure about this one and I would like your advice.

I am not sure what you you referring to with the tattoo statement. I mentioned that I got a tattoo awhile ago and it may or may not be affecting me. Yes, it does make sense that I could have a problem unloading the heavy metals from the tattoo or from all the mercury in fish I've eaten or just unloading toxins from my body in general.

I put my trust in you and almost died as a result. I probably would have died if my family didn't fly over from Italy and help me out. In regards to research, I will never stop researching or learning for anybody. This is not some game to me and I do not enjoy doing this research. I research because I want to live and am trying to survive and regain my health. The majority of people who visit this forum and or any similar forum are not going through half of what I go through on a daily basis. Maybe someone has some low T or thyroid/adrenal issues or they can't get that hard anymore when they are trying to fuck their wife. What I wouldn't give to have such problems. On the other hand look at my situation. I am only 26 years old. I have uncontrollable appetite every day that requires me to eat food all the time or I feel like I am sick if I don't. I go to the bathroom 20-40 times a day and at least 5-10 times at night. I try to work out hard a few times a week and my body still get worse and continues to deteoriate every day. I have been 300 pounds for over 3 years, despite eating healthy foods and putting every ounce of energy I have into working out.

I have no T, no energy, nothing a person at 26 years old normally has. I feel like I am 100 and on my deathbed. I have alot of pain in CNS that has been there for months. My spine hurts so much it feels like its cracking in half sometimes. My arms feel numb at various times throughout the day, every day. Like their falling asleep, except I am wide awake. I cannot work right now and if my parents were not supporting me, I would have been dead months ago. And I could probably name a few more things. The point is what the hell the do you expect me to do. I am getting worse every day and everything any doctor or I have done has not worked yet. All I can do is try to research and help myself. And that is one of the reasons I created this thread. Maybe someone can help.

Even though things aren't that great for me now, I know it will get better soon. I am a very strong person and I can take it. I made it this far, I can almost see the light at the end of the tunnel.

I just have to think logically about my situation and have a plan. And the plan is currently to run tests on my gastrointestinal system to see what the hell might be going on. I am expecting a test from Genova soon on Wednesday that hopefully with give me alot of that info. I also expecting the results from a capsule endoscopy test that should be useful as well. And other tests coming back such as spectracell, toxic element hair test, and a few others. I will update with results when they come in.

If anyone could recommended tests that might help me out and talk to my Doc on Wednesday about, please let me know. Thank you.
 
In the past I had posted an extensive thread on Leptin and it's signifignance within the body, too much or too litle can be devastating. Hans may be onto something with the leptin resistance. Hypoleptimea is another story, but more treatable. The pathway of leptin resistance, from what I've researched, is a long hard one to recovery from, including much attention to diet and exercise. This may be peice of your puzzle.

Leptin could defintely be factor and could help to explain some of the appetite issues. It probably isn't the only thing causing my appetite issues because I have alot of food allergies and other things going on that often signal some GI issues are present, but it could play a role. I think my levels last time we checked around 13.9 I believe, on a scale of 1-10.
 
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